The  Penang Thalassaemia Society (Pertubuhan Thalassaemia Pulau Pinang) was formed in 1988 by a small group of affected families and well-wishers to provide moral support , raise funds to improve treatment and facilities for the  betterment of Thalassaemics.

Announcement: Majlis Sambutan Ulang Tahun Ke 20 Tahun   (click here)

Objectives :

1. To set up a local center whereby Thalassaemics, their families  and well-wishes can get-together to exchange ideas and disseminate data, information  on Thalassaemia.
2. To raise funds to run the various projects such as TAS ( Treatment Assistance Subsidy ) , motivation camps  to improve quality of life of Thalassaemics.
3. To establish and maintain  close contacts with blood donor services, NGOs  so that the  blood transfusion needs of the Thalssaemics are met.
4. To support  and cooperate with government  and local hospitals in the care, treatment and management of Thalassaemia.
5. To liase with other Thalassaemia Societies, national or international, commercial and research establishments  on latest developments in the management of Thalassaemia.
6. To create public awareness and counselling  on Thalassaemia including screening for carriers.
7. To update members and healthcare providers on new modalities of treatment and management.

THE PENANG THALASSAEMIA SOCIETY strongly believes that with proper care and management, Thalassaemics can grow up to be normal , productive adults. Thalassaemia is NOT an illness but a disorder, so it  is worth investing in,  as survival rate with proper management is high.

With total care,Thalassaemics are able to join the workforce and contribute to society.This has already been proven in countries where total care is available free of charge.