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- Treatment
Assistance Subsidy( TAS ) ( * for Penang Thalassaemic members only )
The Society sells L1 ( Deferiprone ) tablets at a subsidized rate
for members. In addition, under TAS, eligible Thalassaemics can get
subsidies from 50% to 80% of the total cost of the drug treatment. The Society
also pays for special blood tests, investigations and
vaccines whenever the need arises.50% subsidy for syringes, butterfly
needles, water for injection, tagederm. Thalasets @ RM 3.00 /pc ( > 50% subsidy)
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Purchase of Items Needed for Subcutaneous Desferal
Therapy
To facilitate availability of items needed for Subcutaneous
Desferal Therapy, the Society purchases the following items in bulk - syringes,
needles, scalp vein sets, distilled water, Emla cream, Tagadem, micropore etc.
Members can buy them at cost or subsidized rate.
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- Blood
Donation Campaigns
The Society actively canvasses for
blood donation to ensure Thalassaemics in Penang have adequate blood for transfusions
on a regular basis. Blood
donors are given certificates as well as a small token of appreciation.
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- Motivation
Camps
The Society
organizes motivational camps for Thalassaemics , affected families and
personnels involved in the care and management of Thalassaemia. Programmes
include self management , monitoring and psychosocial aspects.Such camps bring
together patients, families and well-wishers to exchange ideas and information.
Counselling sessions are conducted by guest speakers to patients, families and carriers.
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- Education
and Updating
The Society
collaborates with the Paediatric,Haemotology units of Penang General Hospital ,
Seberang Jaya Hospital , other Thalassaemia societies of Malaysia to organize
workshops and conferences. Experts in the field of Thalassaemia are invited as
guest speakers local or from abroad. Society also sponsors our local doctors ,
patients and paramedical staff to international conferences to keep abreast with
the latest development and advances
in the management of Thalassaemics.
Society also disseminates
relevant medical and non medical info to members, interested parties
through our own newsletter
( THALWATCH ), videos, booklets and pamphlets.
Through these programs ,
we hope to educate the public on
the management of problems of Thalassaemia.
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- Day-Care
Centres at Penang and Seberang Jaya Government Hospitals
The Society helps to furnish the
daycare centers with
TVs , sofas ,etc so that the Thalassaemics can have their blood transfusion
in a comfortable environment on an outpatient basis.
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- Fund
Raising
Society raises,
by any legal means, the funds required for the above activities. We welcome
donations of old newspapers, magazines, clothings which can be sold for
recycling. This is one of our source of sustained income. Collection Centre at
Society office or tel 04- 2272133 (
office hours only, closed Sat and Sun).
The Society
is fully dependent on public donations for financing its many activities and treatment
subsidies. All cash donations to the Society are
tax-exempted.
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